We have published a brand new paper ‘Core Health Outcomes in Childhood Epilepsy (CHOICE): Development of a core outcome set using systematic review methods and a Delphi survey consensus‘ in the journal Epilepsia. The paper is about the development of the first core outcome set for childhood epilepsy research.
– We used consensus based methods to rate the importance of different outcomes in rolandic epilepsy; this included two rounds of a Delphi survey and a face-to-face meeting that included young people with rolandic epilepsy, their parents and various professionals.
– We identified 39 outcomes across 10 domains that contributed towards a core outcome set for use in childhood epilepsy research.
The research article is an output from the Core Health Outcomes in Childhood Epilepsy (CHOICE) study which is the first work package of the Changing Agendas on Sleep Treatment and Learning in Epilepsy (CASTLE) NIHR funded study (www.castlestudy.org.uk). Holly Crudgington from the Pal Neuro Lab and CASTLE team is the first author of the paper.